In:Multifaceted Multilingualism
Edited by Kleanthes K. Grohmann
[Studies in Bilingualism 66] 2024
► pp. 254–267
Chapter 10Raising awareness of stroke, stroke survivor-perspectives, and stroke–carer research
A perspective from culturally and linguistically diverse backgrounds in Australia
Published online: 4 April 2024
https://doi.org/10.1075/sibil.66.10kam
https://doi.org/10.1075/sibil.66.10kam
Abstract
The aim of this chapter is to propose a research agenda that will promote awareness of stroke warning signs and risk for stroke in culturally and linguistically diverse (CALD) communities. The targeted community in this case, is the Greek immigrant community in Australia. The research agenda also advocates a better understanding of CALD stroke survivors and carers needs to enable capacity-building to encourage wellbeing by supporting unmet needs. This will have a positive impact on health, care and psychosocial outcomes for people living with stroke deficits from CALD backgrounds and their carers and families who support them in everyday life.
Article outline
- 1.Introduction
- 2.Stroke awareness
- 3.When FAST is lost in translation
- 4.CALD stroke-survivor and primary care giver perspectives
- 4.1Renegotiating the new self after stroke: Perspectives from immigrant stroke survivors
- 4.2Identifying the unmet needs of stroke primary carers from CALD backgrounds
- 5.Conclusion
References
References (28)
ABS (2015). Disability, ageing and carers, Australia: First results. Australian Bureau of Statistics. Retrieved on 8 November 2023 from [URL]
(2019). Deaths in Australia. Australian Bureau of Statistics. Retrieved on 8 November 2023 from [URL]
AIHW (2018). Australia’s health 2018. Australia’s Health Series, 16, AUS 221. Australian Institute of Health and Welfare.
Aziz, N. A., Pindus, D. M., Mullis, R., Walter, F. M., & Mant, J. (2016). Understanding stroke survivors’ and informal carers’ experiences of a need for primary care and community health services: A systematic review of the qualitative literature protocol. BMJ Open, 6(1): bc009244.
Bray, J. E., Mosley, I., Bailey, M., Barger, B., & Bladin, C. (2011). Stroke public awareness campaigns have increased ambulance dispatches for stroke in Melbourne, Australia. Stroke, 42, 2154–2157.
Code, C., Papathanasiou, I., Rubio-Bruno, S., de la Paz Cabana, M., Villanueva, M. M., Haaland-Johansen, L., Prizl-Jakovac, T., Leko, A., Zemva, N., Patterson, R. et al.. (2015). International patterns of the public awareness of aphasia. International Journal of Language & Communication Disorders, 51(3), 276–284.
Dimopoulos-Bick, T., Walsh, L., & Sutherland, K. (2021). Indirect impacts of COVID-19: A case study of evidence, advice and representation from consumer and community members in New South Wales Australia. Journal of Patient Experience, 8, 1–8.
DISR (2015). Australia’s science and research priorities 2015. Department of Industry, Science and Resources. Retrieved on 8 November 2023 from [URL]
Dörfler, E., & Kulnik, S. T. (2020). Despite communication and cognitive impairment – person-centred goal setting after stroke: A qualitative study. Disability and Rehabilitation, 42(25), 3628–3637.
DPC (2017). South Australian multicultural and ethnic affairs commission report on CALD ageing. Government of South Australia Department of the Premier and Cabinet. Retrieved on 8 November 2023 from [URL]
Gonzalez, C., & Nakas, T. (2013). Factors associated with stroke survivor behaviors as identified by family caregivers. Rehabilitation Nursing, 38, 202–211.
Grawburg, M., Howe, T., Worrall, L., & Scarini, N. (2013a). Third-party disability in family members of people with aphasia: A systematic review. Disability & Rehabilitation, 35(16), 1324–1341.
(2013b). A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia. Aphasiology, 27(7), 828–848.
(2014). Describing the impact of aphasia on close family members using the ICF framework. Disability and Rehabilitation, 36(14), 1184–1195.
Hickey, A., Holly, D., Mcgee, H., Conroy, R. M., & Shelley, E. (2012). Knowledge of stroke risk factors and warning signs in Ireland: Development and application of the Stroke Awareness Questionnaire (SAQ). International Journal of Stroke, 7(4), 298–306.
Joseph, S., Becker, S., Elwick, H., & Silburn, R. (2012). Adult carers quality of life questionnaire (ACQoL): Development of an evidence-based tool. Mental Health Review, 17(2), 57–69.
Kambanaros, M. (2019). Evaluating personal stroke narratives from bilingual Greek – English immigrants with aphasia. Folia Phoniatrica et Logopaedica, 71(2–3), 101–115.
Leventhal, H., Leventhal, E. A., Contrada, R. J. (1998). Self-regulation, health and behavior: A perceptual-cognitive approach. Psychological Health, 13(4), 717–733.
No Postcode Untouched – Stroke in Australia 2017 report. Retrieved on 8 November 2023 from [URL]
O’Donnell, M. J., Chin, S. L., Rangarajan, S., Xavier, D., Liu, L. et al.., on behalf of the Interstroke Investigators (2016). Global and regional effects of potentially modifiable risk factors associated with acute stroke in 32 countries (INTERSTROKE): A case-control study. The Lancet, 388(10046), 768–775.
Pindus, D. M., Mullis, R., Lim, L., Wellwood, I., Rundell, V. A., Aziz, N. A., & Mant, J. (2018). Stroke survivors and informal caregivers experience of primary care and community healthcare services – A systematic review and meta-ethnography. PLOS One 13(2), ie0192533.
Principe, I. (2015). Issues in health care in South Australia for people from culturally and linguistically diverse backgrounds: A scoping study for the Health Performance Council. Retrieved on 8 November 2023 from [URL]
Spark, J. I., Blest, N., Sandison, S., Puckridge, P. J., Saleem, H. A., & Russell, D. A. (2011). Stroke and transient ischaemic attack awareness. Medical Journal of Australia, 195(1), 16–19.
WHO (2001). International classification of functioning, disability and health (ICF). World Health Organization.
Williams, L., Ali, M., VandenBerg, K., Godwin, J., Elders, A., Becker, F., Bowen, A., Breitenstein, C., Gandolfi, M., Godecke, E., Hilari, K., Hinckley, J., Horton, S., Howard, D., Jesus, L. M. T., Jungblut, M., Kambanaros, M., Kukkonen, T., Laska, A., MacWhinney, B., Martins, I., Mattioli, F., Meinzer, M., Palmer, R., Patrício, B., Price, C., Smania, N., Szaflarski, J., Thomas, S., Visch-Brink, E., Worrall, L. & Brady, M. C. (2016). Creating an international, multidisciplinary, aphasia dataset of individual patient data (IPD) for the REhabilitation and recovery of peopLE with Aphasia after StrokE (RELEASE) project. International Journal of Stroke, 11(4): S50.
