Article published In: Narrative Inquiry
Vol. 24:1 (2014) ► pp.1–27
Agency in illness narratives
A pluralistic analysis
Published online: 28 October 2014
https://doi.org/10.1075/ni.24.1.01ard
https://doi.org/10.1075/ni.24.1.01ard
In this essay, I argue that structural approaches to narrative articulate identity and agency as internal constructs. As such, these analyses neglect the roles of institutional and social factors. A pluralistic analysis of these illness narratives, such as the one offered in this essay, can help narrative scholars better understand how these forces interact with the individual experiences of people living with illness in supporting and constraining agency.
Keywords: empowerment, oral histories, illness narratives, narrative analysis
References (51)
American life histories. (1998). American life histories: Manuscripts from the federal writers’ project 1936-1940. Retrieved from [URL]
Bamberg, M.G.W. (1997). Positioning between structure and performance. Journal of Narrative and Life History, 7(1-4), 335–342.
Boschma, G. (2012). Community mental health nursing in Alberta, Canada: An oral history. Nursing History Review, 201, 103–135.
Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4(2), 167–181.
Choi, S. (2008). Silencing survivors’ narratives: Why are we again forgetting the No Gun Ri story? Rhetoric and Public Affairs, 11(3), 367–388.
Clandinin, D.J., & Connelly, F.M. (2000). Narrative inquiry: Experience and story in qualitative research. San Francisco: Jossey-Bass.
Cloud, D. (1999). The null persona: Race and the rhetoric of silence in the uprising of ‘34. Rhetoric & Public Affairs, 2(2), 177–209.
Davies, B., & Harré, R. (2002 [1990]). Positioning: The discursive production of selves. In M. Wetherell, S. Taylor & S.J. Yates (Eds.), Discourse, theory and practice: A reader (pp. 261–209). London: Sage.
Day, D., & Kjaerbeck, S. (2013). ‘Positioning’ in the conversation analytic approach. Narrative Inquiry, 23(1), 16–39.
De Fina, A. (2009). Narratives in interview — The case of accounts for an interactional approach to narrative genres. Narrative Inquiry, 19(2), 233–258.
De Fina, A., & Georgakopoulou, A. (2012). Analyzing narrative. Cambridge, UK: Cambridge University Press.
Deppermann, A. (2013). How to get a grip on identities-in-interaction: (What) does ‘positioning’ offer more than ‘membership categorization’? Evidence from a mock story. Narrative Inquiry, 23(1), 62–88.
Dickinson, T., Cook, M., Playle, J., & Hallett, C. (2012), ‘Queer’ treatments: giving a voice to former patients who received treatments for their ‘sexual deviations’. Journal of Clinical Nursing, 21(9-10), 1345–1354.
Duffy, J. (2007). Recalling the letter: The uses of oral testimony in historical studies of literacy. Written Communication, 24(1), 84–107.
Egerod, I., Christensen, D., Schwartz-Nielsen, K., & Ågård, A. (2011). Constructing the illness narrative: A grounded theory exploring patients’ and relatives’ use of intensive care diaries. Critical Care Medicine, 39(8), 1922–1928.
Fernald Community Alliance. (2007). The Fernald living history project. Retrieved from [URL]
Frank, A.W. (1995). The wounded storyteller: Body, illness and ethics. Chicago: The University of Chicago Press.
Frontline. (2013). An oral history of the gulf war. Retrieved from [URL]
Frost, N. (2009). ‘Do you know what I mean?’: The use of a pluralistic narrative analysis approach in the interpretation of an interview. Qualitative Research, 9(1), 9–29.
Garden, R. (2010). Telling stories about illness and disability: The limits and lessons of narrative. Perspectives in Biology and Medicine, 53(1), 121–135.
Haidet, P., Kroll, T.L., & Sharf, B.F. (2006). The complexity of patient participation: Lessons learned from patients’ illness narratives. Patient Education and Counseling, 621, 323–329.
Heritage, J. (1998). Conversation analysis and institutional talk: Analyzing distinctive turn taking systems. In S. Cmerjková, J. Hoffmannová, O. Müllerov & J. Svetlá (Eds.), Proceedings of the 6th International Congress of IADA (International Association for Dialog Analysis) (pp. 3–17). Tübingen: Niemeyer.
Herndl, C.G., & Nahrwold, C.A. (2000). Research as social practice: A case study of research on technical and professional communication. Written Communication, 17(2), 258–296.
Jordens, C.F.C., Little, M., Paul, K., & Sayers, E, J. (2001). Life disruption and generic complexity: A social linguistic analysis of narratives of cancer illness. Social Science & Medicine, 531, 1227–1236.
Labov, W. (1982). Speech acts and reactions in personal narrative. In D. Tannen (Ed.), Analyzing discourse: Text and talk (pp. 219–247). Washington DC: Georgetown University Press.
Labov, W., & Waletzky, J. (1967). Narrative analysis: Oral versions of personal experience. In J. Helm (Ed.), Essays on the verbal and visual arts (pp. 12–44). Seattle: University of Washington Press.
Lee, C.J., & Grady M. (2012). Gather ye rosebuds while ye may: A college of nursing history project. Nurse Educator, 37(5), 222–225.
Life Journeys: An Oral History Project for Hospice Patients. (2011). Retrieved from [URL]
Louie B. Nunn Center for Oral History. (2013). Family farms of Kentucky oral history collection. Retrieved from [URL]
Lucius-Hoene, G., & Deppermann, A. (2000). Narrative identity empiricized: A dialogical and positioning approach to autobiographical research interviews. Narrative Inquiry, 101, 199–222.
Mishler, E.G. (1984). The discourse of medicine: Dialectics of medical interviews. Norwood, NJ: Ablex Publishing Corporation.
. (1995). Models of narrative analysis: A typology. Journal of Narrative and Life History, 5(2), 87–123.
. (2005). Patient stories, narratives of resistance and the ethics of humane care: A la recherche du temps perdu. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 9(4), 431–451.
National Diabetes Education Program. (2012). 4 Steps to control your diabetes. For life. Retrieved from [URL]
Oxford Centre for Diabetes, Endocrinology and Metabolism (OCDEM). (2009). Background, working methods and outcomes. Retrieved April 15, 2010, from the Diabetes Stories web site, [URL]
Ricoeur, P. (1990). Times and narrative. (K. McLaughlin, Trans.). Chicago: University of Chicago Press.
Riessman, C.K. (1990). Strategic uses of narrative in the presentation of self and illness. Social Science & Medicine, 30(11), 1195–1200.
. (2003) Performing identities in illness narrative: Masculinity and multiple sclerosis. Qualitative Research, 3(1), 5–33.
. (2012). Analyzing personal narratives. In J.F. Gubrium & J.A. Holstein (Eds.), Handbook of interview research: Context and method (pp. 695–710). Thousand Oaks, CA: Sage Publications.
Robinson, I. (1990). Personal narratives, social careers and medical courses: Analysing life trajectories in autobiographies of people with multiple sclerosis. Social Science & Medicine, 30(11), 1173–1186.
Seale, C. (2003). Methodology versus scholarship? Overcoming the divide in analysing identity narratives of people with cancer. Journal of Language and Politics, 2(2), 280–300.
The Consumer/Survivor/Ex-patient Oral History Project Four Willard Psychiatric Center Stories. (n.d.). Retrieved from [URL]
Thomson, A. (2006). Four paradigm transformations in oral history. The Oral History Review, 34(1), 49–70.
University Archives of Virginia Tech. (2011). First black women @ Virginia Tech. Retrieved from [URL]
Cited by (9)
Cited by nine other publications
Balikó, Fanni, Dr. Orsolya Vincze, Dr. Krisztina Csókási & Dr. Melinda Pohárnok
Toivonen, Heidi & Marco Caracciolo
Törrönen, Jukka
Törrönen, Jukka
Akuoko-Barfi, Charlotte, Tearney McDermott, Henry Parada & Travonne Edwards
Jones, Rodney H.
Plage, Stefanie
This list is based on CrossRef data as of 28 november 2025. Please note that it may not be complete. Sources presented here have been supplied by the respective publishers. Any errors therein should be reported to them.
