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Article published In: Information Design Journal
Vol. 29:2 (2024) ► pp.92–107

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Developing a new urology questionnaire from the patient’s perspective

ORCiD logo with link | University Medical Center Groningen
ORCiD logo with link | Rijnstate Hospital
ORCiD logo with link | University Medical Center Groningen
ORCiD logo with link | University Medical Center Groningen
ORCiD logo with link | University of Groningen | Stellenbosch University
Published online: 6 March 2025
DOI logo with link
https://doi.org/10.1075/idj.24004.sch
Abstract
In this qualitative study a new urology questionnaire to assess Lower Urinary Tract Symptoms (LUTS) in men was incrementally developed. The patient’s perspective was always paramount. Thirty-seven male participants aged 40 and over with different levels of health literacy completed several versions of the new questionnaire. Participants were asked to think aloud while completing the task. Participants’ utterances and comments in a follow-up interview were used to create improved versions of the questionnaire. The final version was the Dutch Reduced Illustrated Prostate Symptom Score (DRIPSS), a questionnaire consisting of pictorial scales. Participants’ feedback suggests that the DRIPSS will largely eliminate patients’ completion problems.
Article outline
  • 1.Introduction
  • 2.Method
    • 2.1Study design
    • 2.2Materials
    • 2.3Participants and setting
    • 2.4The working-aloud method
    • 2.5Procedure
    • 2.6Data analysis
    • 2.7Characteristics of the investigators
  • 3.Results
    • 3.1First round
    • 3.2Second round
    • 3.3Third round
    • 3.4Fourth round
  • 4.Discussion
    • 4.1Strengths and limitations
    • 4.2Implications for research
  • 5.Conclusion
  • Acknowledgements
  • References
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